What Now?

You know how it feels when you think you just might have a grip on something finally and all of a sudden the game plan changes?  Well yesterday was one of these days for me.  I had my long awaited appointment with the new Dr.  She is an Infectious Disease Doctor and it was assumed that I had probably come in contact with some funky parasite or bug at some point in my adult life and it was causing all these problems.  This new Dr. was going to get to the bottom of the problem..  Well we hit a snag.  She begins looking over my massive pile of lab work from the last 10 years, concentrating on the last 2 years mainly and looks at myself and my husband and asked who my Dr's were.  I tell her and she keeps writing feverishly..  Now to go back a little and give you a little history, I was tested for low spinal fluid pressure 4 years ago in regards to my headaches and they did a Spinal Tap.  It came back probable for MS.  I ran all over Michigan for 1 year seeing specialists only to be told you have all the symptoms, but your MRI's are clear, so you don't have MS.  fast forward to a 2 years ago.  I am talking tom my Neurologist and I Saul to him aren't we supposed to do a final Spinal Tap to rule out MS and he said "Yep your right".  We schedule it and I have it done.  A week later I get a call saying it is coming back negative for MS.  I get my copy don't really pay attention and putt in my notebook that I keep my records in.  Fast forward to yesterday.  This new Dr is comparing the 2 Spinal Taps and she sees the Dr's handwriting on the bottom of the second one and cant Reed it and  asks me if I know what  it says.  I told her it Said d to call me and tell me it was negative.  She got very upset and said that this test is not negative for MS, It is decreased by 1 from the previous test.  First test showed 4 + more bands and this test showed 3 bands, but the big deal is you are not supposed to have any in your system EVER unless you have MS primarily or a couple of other diseases.  So I have unofficially DX'ed with MS  and am looking for a Dr in Michigan who knows the head from there rear end.  Any suggestions??

Ever have one of those days.. or weeks??

Disclaimer:  I don't generally post the same thing to both blogs but this one seems to apply greatly for me this week so I apologize to anyone who reads both..

Have you ever had one of those days that turns into one of those weeks? Well boy am I having one this week. It is far too deep to go into , but needless to say I want a do-over.. I want to do-over the entire week.I think I am bound to do better at listing in my store, because I won't allow myself to become so distracted. (yeah, right) I will do better with my housework, I will actually blow dry my hair and maybe put on some make-up. One of the down falls of working at home ,I have found, is I have let myself go a bit. I don't do my hair daily. I don't do my make-up except on Sundays for church, which saves money on make-up, but REALLY how attractive can that be to my wonderful, husband.








You know what.. I am going to get up in the morning and I am going to blow dry my hair AND put on my make-up. I work my eBay business full time and tomorrow I am going to treat it like that, a full-time job. Lets see if I get more done in an 8 hour shift. I feel an experiment coming on.... Stay tuned...







Michelle

Well it is decided we will keep a separate blog for the Chronic Pain Crowd...

There were several reason that went into this decision and the main one is privacy.  I know that there are times that I speak rather bluntly about some symptoms and I know that I may not want all my friends who read the regular "MY Life" blog to have to endure that.  I am sure you all feel the same way.  You don't know these people and you certainly don't know my circle of friends so how in the world would you feel comfortable speaking about IBS on a separate page of a main blog when with just one click someone is reading a recipe.  NO-  This is the best answer.  I may get a bit behind at times and may need a kick in the behind to be reminded to post, because my memory is the worst.  That being said we can begin with the go stuff....

This is for you all, not me.  I know the blog lay-out is not really great for communication, but if we use the comment section we should be about to talk with each other and have some dialog.  I might be able to figure out some kind of feature on here to make that easier, but until then we will just use the comments to leave "comments" obviously and to leave messages for one another and of course once you are comfortable with one another you can connect up with your email addys.  I will start a blog roll on here so we have each others blog address and can go to each of them and "like" them so we get notified of each others updates.  BUT give me a few days to figure out how to get it all done...

Gentle Hugs-
Michelle

So maybe I will keep both sites up..

This is the original Chronic Pain site....I am having problem with people being able to post to the page onmy personal blog so how bout we just have our own and it will give us some privacy as well now that I think of it..  We can speak a bit more bluntly if needed about symptoms that we may not want our other fiends to know so much about.  What do you say.. Keep the page on my personal site ?  Or have our own blog some privacy?
Michelle

PS- Please try to leave a comment so we now if it works......