What Now?

You know how it feels when you think you just might have a grip on something finally and all of a sudden the game plan changes?  Well yesterday was one of these days for me.  I had my long awaited appointment with the new Dr.  She is an Infectious Disease Doctor and it was assumed that I had probably come in contact with some funky parasite or bug at some point in my adult life and it was causing all these problems.  This new Dr. was going to get to the bottom of the problem..  Well we hit a snag.  She begins looking over my massive pile of lab work from the last 10 years, concentrating on the last 2 years mainly and looks at myself and my husband and asked who my Dr's were.  I tell her and she keeps writing feverishly..  Now to go back a little and give you a little history, I was tested for low spinal fluid pressure 4 years ago in regards to my headaches and they did a Spinal Tap.  It came back probable for MS.  I ran all over Michigan for 1 year seeing specialists only to be told you have all the symptoms, but your MRI's are clear, so you don't have MS.  fast forward to a 2 years ago.  I am talking tom my Neurologist and I Saul to him aren't we supposed to do a final Spinal Tap to rule out MS and he said "Yep your right".  We schedule it and I have it done.  A week later I get a call saying it is coming back negative for MS.  I get my copy don't really pay attention and putt in my notebook that I keep my records in.  Fast forward to yesterday.  This new Dr is comparing the 2 Spinal Taps and she sees the Dr's handwriting on the bottom of the second one and cant Reed it and  asks me if I know what  it says.  I told her it Said d to call me and tell me it was negative.  She got very upset and said that this test is not negative for MS, It is decreased by 1 from the previous test.  First test showed 4 + more bands and this test showed 3 bands, but the big deal is you are not supposed to have any in your system EVER unless you have MS primarily or a couple of other diseases.  So I have unofficially DX'ed with MS  and am looking for a Dr in Michigan who knows the head from there rear end.  Any suggestions??